The Immortal Life of Henrietta Lacks

I saw this film a long time ago – maybe it was on TV? – and ever since then “I should read the book” has been vaguely in my head. I’ve finally done so because someone else, in my book club, nominated it as one of our books. Sometimes it really does take that external influence. And I’m so glad I did because this really is a great book, and an amazing story.

The basics of the Henrietta Lacks story are that she was an African-American woman who, in 1951, was diagnose with cervical cancer. Doctors took a sample of the cells of the cancer, as was standard; they were sent to a lab that was doing some early work on trying to get cells to live in petri dishes (basically). For whatever reason, her cells were the first to prove functionally immortal: they did not die as every other human cell did, but reproduced… and kept reproducing… and, after a fairly short while, HeLa cells were being used all over the world for a variety of biomedical research.

Lacks, meanwhile, died. She had not been told her cells were being cultured; her family were not told either. Eventually, the family found out – there’s a whole story about how it was revealed who these cells that revolutionised the world came from – and it wasn’t an easy thing for them, for a whole bunch of reasons.

This book would be interesting if it were just the straightforward (well, as straightforward as it could be) story of Henrietta and her cells. But that’s all this book does. Instead, there are really three stories.

There’s the story of Henrietta herself. This is necessarily brief: she only lived to 30, there’s not a whole of sources, and she lived a difficult, but fairly straightforward, life: not a lot of education, married and having children young, not working outside of the home – then sick, and dying. Skloot writes about her life with compassion and, honestly, love; she doesn’t moralise or condemn, she doesn’t go all ‘woe what a tragedy’ in that fake ‘oh how hard things were’ way that some people might.

There’s the story of Henrietta’s cells, and the larger scientific story around it. This, too, is fascinating; the attempts at culturing cells, the fear felt by society about what might happen with such cells… and then there’s all of the ethical issues, too, about whether tissues outside of the body are still the property of the person who grew them. And this is tied into larger questions of American medical history around the white scientific establishment and Black bodies, which is of course a whole thing itself.

And thirdly, there’s the story of the Lacks family. Skloot doesn’t try to keep herself out of the story; in fact, she is very present, as she tries to get in touch with the Lacks children, to learn their part of the story. The children – in particular, the only surviving daughter, Deborah – are reticent, for a lot of good reasons. But they gradually come to trust Skloot, and Deborah takes part in a lot of Skloot’s research; the story of their time together, learning about Henrietta (and the eldest daughter, who died as an adolescent) is a vital part of the story: about Henrietta as a human woman, about the consequences of medical decisions, and about the lives of African-Americans in the last half of the twentieth century.

This is one of the best science history books I’ve ever read.

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